Williams Syndrome

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Has any one had experience in treating the feet of children with Williams Syndrome?
I have a female patient age 14years. She has had major upper spinal surgical for scoliosis of her thoracic spine realignment at the Wellington Hospital London where rods have been inserted . The family have been told no more upper body growth will take place.

I have made Orthotic Devices for this patient using a reputable Laboratory to reduce blisters under first ray ( Functional Hallux Limitus) and to aid supination moments around the sub-talar joint, she was medially deviated at this joint!

I understand muscle tone is low in patients with this syndrome.

She stands right shoulder high, Lower limbs are unremarkable neurologically, pelvis level.

I have seen at a review appointment recently under the cuboid bone on the right foot a rocker bottom appearance, along the lateral border. The area is inflamed and callous production beginning. Although no pain is reported from the patient!

I have palpated the area and the cuboid moves as we expect and is not painful.

Any help with treatment plan would be useful.

kind regards
Brightwell