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Foot pain and disability in Ehlers-Danlos syndrome

Discussion in 'General Issues and Discussion Forum' started by Hylton Menz, Mar 10, 2005.

  1. Hylton Menz

    Hylton Menz Guest


    Members do not see these Ads. Sign Up.
    Interesting paper from the latest issue of Disability & Rehabilitation:

    Foot pain and disability in individuals with Ehlers-Danlos syndrome (EDS): Impact on daily life activities

    Britta Berglund, Gun Nordström, Catharina Hagberg, Anne-Cathrine Mattiasson

    Purpose: to investigate the amount and severity of podiatric problems in individuals with EDS as well as the consequences on daily life activities, and to compare these results with the results from a comparison group of the general population.

    Method: The Manchester Foot Pain and Disability Schedule (MFPDS) and a demographic and foot-specific form were mailed.

    Results: One hundred and thirty-six individuals with EDS and 292 from the comparison group responded. The median MFPDS total score in the EDS group was 33 (range 17-49) (mean 32, SD 8) and in the comparison group 17 (range 17-41) (mean 19, SD 4) (P<0.001). The items most frequently marked with 3 points in the EDS group were: 'I avoid standing for a long time', 'I catch the bus or use the car more often', and 'I get irritable when my feet hurt' (55, 46 and 43%, respectively). When comparing the NRS scores (i.e. Numeric Rating Scale) regarding pain intensity between the EDS group (median 5) and the comparison group (median 0), a statistically significant difference was found (P<0.001). Other foot problems than pain were reported by 73% (n=100) of the EDS group and by 21% (n=60) of the comparison group (P<0.001). The presence of flat feet in the EDS group and the comparison group was reported by 55% (n=75) and 8% (n=23), respectively.

    Conclusions: Individuals with EDS endure difficulties with their mobility due to their foot problems and related disability. It is therefore of utmost importance to find ways to assess the actual foot status for this group and to support the individuals with solutions to their problems with ambulation.

    Kind regards,

    Hylton
     
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    Articles:
    1
    Musculoskeletal Conditions in a Pediatric Population with Ehlers-Danlos Syndrome
    Courtney M. Stern, BS, Michael J. Pepin, MA, Joan M. Stoler, MD, Dennis E. Kramer, MD, Samantha A. Spencer, MD, Cynthia J. Stein, MD, MPH
    Jnl of Pediatrics; Article in Press
     
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    Articles:
    1
    The 2017 international classification of the Ehlers–Danlos syndromes
    Fransiska Malfait, et al
    American Journal of Medical Genetics Part C: Seminars in Medical Genetics 17 March 2017 (full text)
     
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    Articles:
    1
    Podiatry alterations in Ehlers-Danlos syndrome.
    Palomo-Toucedo IC et al
    Med Clin (Barc). 2019 Jun 26. pii: S0025-7753(19)30354-9
     
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    Articles:
    1
    Altered multi-segment ankle and foot kinematics during gait in patients with Hypermobile Ehlers-Danlos Syndrome/Hypermobility spectrum disorder. A case-control study
    Stefan Vermeulen et al
    Arthritis Care Res (Hoboken). 2020 Dec 4
     
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    Articles:
    1
    Inter-segmental coordination amplitude and variability differences during gait in patients with Ehlers-Danlos syndrome and healthy adults
    Shawn M. Robbins et al
    October 28, 2021
     
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