Leg "Growing" Pains in Congenital Heart Disease

NewsBot · Feb 1, 2019

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Leg Pains in Congenital Heart Disease – A Distressing Symptom of a
Wider Problem
Suzie Hutchinson et al
Source

Purpose: Anecdotal reports suggest that children and young adults with congenital heart disease
frequently experience pain in their legs. The purpose of this pilot study, performed by Little Hearts
Matter patient organization, was to assess the burden of leg pains in this group and begin to
investigate associated factors and consequences for daily living.
Methods: An internet-based survey was distributed by Little Hearts Matter patient organization.
Following anonymization and collation, responses were analyzed and compared to their healthy
siblings.
Results Of the 220 patients that responded, 94% reported leg pains compared to 30% of siblings
(n=107; p<0.001). In respondents, pain was typically reported to occur in the lower legs or around
the knees or ankles, often associated with crying and screaming (49.0%) and most commonly
occurring at night-time (82.0%). Individuals taking aspirin and those who were more active were
more likely to report leg pains. Older age was associated with leg pain that occurred with stress
(p=0.02) and at night (p=0.05). Analgesia (64.1%) or massage (53.9%) was the preferred option for
alleviation. There was no gender bias, association with diagnosis, surgical history and or
relationship with diagnosed orthopaedic issues.
Conclusion Leg pains are more frequent in those with congenital heart disease than their healthy
siblings. Aetiology is uncertain but pains share many common characteristics with benign “growing
pains”.
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Admin2 · Feb 1, 2019

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